Small cell carcinoma of the ovary hypercalcemic type is a rare form of ovarian cancer that affects a very small number of young women. I received this diagnosis after having emergency surgery to remove a tumor in my abdomen in September of 2010. Four days before my surgery I began having abdominal pains and by the 3rd day, I was having trouble walking and was bloated. The tumor they removed was the size of a football and originated in my right ovary. It spread to my fallopian tube and had attached to several of my internal organs. During surgery, the pathologist assumed it was a granulose cell tumor, but two weeks later we received the correct diagnosis.
When I met with my oncologist, she was very honest about the fact that there was very little research and no accepted treatment protocol for this type of cancer. She also let us know that it was extremely aggressive and we needed to design a treatment that was equally aggressive. I began chemotherapy with cisplatin and etoposide immediately. I underwent 4 rounds of treatment for 5 days every 3 weeks. When I completed my treatment, I underwent a total hysterectomy to remove any other possible source for this cancer to develop again. I also underwent 25 days of pelvic and partial abdominal radiation post-surgery.
This is an extremely abbreviated description of my journey and my hope is to educate others and elevate awareness about this terrible disease. My journals contain very in-depth discussions of my treatment, diet and life during this time. I have also included links to research, other sites with a similar dedication, and a summary of the diet I am currently on to keep myself as healthy as possible. I encourage dialogue and feedback and am forever grateful to those of you who have followed my journey and continue to offer thoughts and prayers as I continue on my road to complete recovery and remission.
***NOTE*** We are experiencing technical difficulties with the blog and guest book on the website. The situation should be resolved soon and Carrie will be able to continue posting with updates. Carrie is fine, the lack of posting is due to a technical issue.
Hello friends!! I am feeling wonderful and have graduated to scans every year! I even had a conversation with my oncologist about getting my port out early...we'll see:) There have been lots of things going on with myself and with research for small cell carcinoma of the ovary. My girls are growing way too fast. Ella finished kindergarten and is so excited about starting first grade. Ava finished her first year of preschool and made some great friends and is also looking forward to going back. I changed buildings last year and was working with at-risk students who were removed from the normal school setting for a variety of reasons. It was extremely rewarding and I loved it! I have actually applied for and am beginning this next year as a Peer Assistance and Review Consultant. I will spend the next three years mentoring and evaluating new teachers. I am very excited for this new and challenging opportunity, but am already saddened that I won't be working directly with kids. It will be a huge change for me, but hopefully I can make just as much difference here.
I lost my grandmother this past spring to breast cancer and while it has left a hole in my hear that I'm not sure will ever be filed, it put life into perspective once again for myself and my family. It can fee like a battle each day to live in the moment, which I know sounds strange, but it's so easy to get lost in the bustle and details of life. Part of the reason why I haven't been as good about keeping all of my friends and family up-to-date. So many of you follow me on Facebook that I feel like I'm keeping up:) Anyhow, the pother reason I'm posting is that I've set a goal of $500.00 to raise in the Hope for Heather Ovarian Cancer walk/run on Thursday, September 13th. I'd love to meet and even surpass that goal. I have some exciting news about research that has already blown me away that I will post next time. I'm posting a link below and would love for as many of you as possible to join TEAM PARISH as we walk our way to a cure! You are all an amazingly supportive group and I am always blown away by the love you've shown me. Here is the link...
I will see you all soon...tons of love your way!!!
A thousand apologies for the ridiculous amount of time that has gone by. This is a good indicator of how much I need to slow life down. If anyone has any suggestions on how to do that...please send them my way:)
First let me say that I am feeling wonderful! I just met with my oncologist yesterday for the test results and everything is clear once again! I will be going for a bone scan at the recommendation of the radiologist to rule out early-onset osteoporosis due to the absence of hormones. I have been taking vitD, which was recommended by Dr. Stram, my integrative doc, but I may need to do more to increase and maintain my bone mass. We also discussed decreasing the frequency of my scans to every 6 months instead of every 4. Great news, but also a bit scary. I am beyond elated with everything that has happened and continues to happen in my life. I remember wondering if I would be here to send Ella to kindergarten and tomorrow is her trial bus run. Life continues to bless my family. Thank you all for everything you've done for us and for your continued love and support.
GREAT NEWS!!!! I went in a week early for my scan because I was having some on and off abdominal pains and everything is completely clear:) I always walk the line between being an alarmist and letting things go and not freaking out and this has felt like very long 4 months for me for some reason. I can't describe the relief I feel. I read the whole report while holding my breath and will meet with Dr. Cunningham next Thursday for an exam. Life continues to bless me with excellent health and an amazing family. I'm preparing for the girl's birthday bash. I can't believe they will be 3 and 5. Time has flown by way too fast. I keep trying to block the fact that Ella is going to kindergarten next year:( She is so excited and I'm terrified and wishing she would just stay little forever. I love the stage they're both at right now. They say the funniest things and make me laugh every day. I hope this finds all of you in good health and as always than you so very much for your continued love and support:)
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I hope everyone had a wonderful Christmas! We enjoyed every minute and were so happy to be able to spend it with our family. The girls were so exited to countdown to the day and were over the moon to open all of their presents. Santa was good to them and we're planning on spending our time off playing all of the games that they got. Daddy even got them a pair of mini cross-country skis so thank goodness we finally have all of this snow. Gram and Caca got the girls a drum set and I'm developing a permanent headache:) It's been so wonderful watching the girls begin to really play with each other now that Ava is older. I love to listen from the other room and often have to run away so they don't hear me laughing. My hope is always that they will be best of friends and it warms my heart to see the love they share. I'm looking forward to the new year and another notch in my belt as I prepare for my next scan January 28th. Happy holidays and as always lots of love to you all:)
I just finished making my agave pumpkin pie and maple cheesecake. The girls are with Grammy and Gramps today making cookies for tomorrow and I've been home cleaning and preparing for Thanksgiving. Another year with sooooo much to be thankful for. My girls are growing up too fast and I truly want to stop time on most days. Ava is a spitfire and such a little peanut, and Ella is so wise and precious beyond her years. There has not been a day that's gone by that I haven't had a moment to reflect upon how amazing my journey has been. When I start feeling the pressures of life taking over, I ask myself, "what can I change"??...I fought too hard for my life to worry about things like work or anything outside of my amazing family. It's so easy to get caught up in the storm of life that my only hope is to live each day like it's my last and cherish every single moment. Happy Thanksgiving to you all and may we celebrate many more together:)
I hope everyone is gearing up for this crazy storm coming our way. We made sure our flashlights all had batteries and we've got some extra water just in case. We've all been enjoying this amazing weather lately. We finally made our way to Clark Reservation, after living right near it for 2 years already. We told the girls that we were going hiking and they had a blast. They both loved the stone steps going down into the gorge and kept saying, "mom, we really love hiking!!" They were adorable and really good climbers too. We actually went back yesterday to gather some pond water for my students to view under the microscope at school. I'm not looking forward to winter coming, but they are over the moon about being able to bundle up and go play in the snow.
The girls are ready for Halloween and I'm hoping the weather is OK. I wish we could have celebrated this past Saturday as it was the perfect day. Ella is going to be Alice in Wonderland and Ava is Aurora...aka Sleeping Beauty. They can't wait to go trick or treating:)
I'm still feeling great and am looking forward to spending the holidays with my family. We're hosting Thanksgiving again this year and I'm already pulling out some new recipes to try. School is in full swing and as crazy as ever. This year feels a bit more organized in some ways. I'm thankful for the friends I have at Frazer that make my days there much more enjoyable:) I hope everyone has a wonderful Halloween!
Well, the scan results are in and everything is GREAT!!!...no questions, no scary spots, just perfect:) I apologize that I wasn't able to post earlier, but we've undergone a computer update and I had trouble finding passwords and addresses to update this page. I'm so relieved and am looking forward to another 4 months and a celebration again.
I ran in the Hope For Heather race last weekend and I cut my time down by 1.5 minutes. I ran the 5k in 28 minutes. I was happy with my time and am ready for the next race, which thankfully isn't until next year:) We're headed to Springside Farm today to pick pumpkins and pet some animals with my dad who's in town for the weekend. We're all excited for the Apple Festival next weekend too. I love fall so much! Thank you again for your love and support
I can't believe a month has gone by...when did that happen? School has started for me and along with it lots of new routines and busy days and evenings. We're staying busy with all sorts of activities for the girls too. We went to a new organic orchard for apples this past weekend and are excited about our zoo class this weekend. The girls are also staying busy with swimming lessons, soccer, and ballet/tap. I know... too many things my mother keeps telling me:) I'm excited for fall and all of the holidays that follow. I've been feeling great and am running in the Hope For Heather Race on September 23rd at Syracuse's Inner Harbor. This race was a goal for me last year and I was so proud to run it and feel like myself again. I remember tearing up as I crossed the finish line and saw my family cheering for me. I'm hoping to cut my time down this year.
My next scan is September 18th and I won't have results until the 25th :( This has seemed like a really long time in between scans for some reason. I may be feeling some guilt from my binge eating at Disney...not sure. I just can't wait to get some good, and hopefully definitive for once...news. Keep me in your prayers and I thank you all from the bottom of my heart for keeping up with me and staying in touch:)
I just realized that I have to go back to school August 30th and I literally want to cry:( This has been an amazing summer so far and I'm so sad that it has to end.
We got back form Disney last week and had the time of our lives! The plane ride there was rough as we were delayed 3 hours, but once we go there the girls were in princess heaven. They had no problem at all standing in line to wait for their autographs and pictures. They loved the rides too and just overall had the best time. Ella keeps asking when we're going back:) I honestly would have preferred to take them when they were older, but with everything that's happened I figured now is a better time than ever. I will admit that I had quite a few teary moments while we were there. Sometimes I just get overcome with emotion when I realize that I'm doing something that almost 2 years ago I never thought I would be able to do with the girls...just awesome:)
I have my next scan scheduled for September 18th and as always it feels too far away. Some days it is so difficult to pretend that I'm OK when inside I'm freaking out over every little pain or just agonizing over what my next scan will say. I am always grateful that things have been so positive so far, but my head gets the better of me sometimes and I just get scared.
I'm hoping to live it up for the next few weeks before the hammer drops and school begins. I hope you're all enjoying this amazingly beautiful summer...love to you all!!!
Summer is rolling by as fast as ever and we have so many great things planned. Bob and I are taking the girls to Enchanted Forest tomorrow and I don't know who's more excited, them or me. I have such great memories of going there as a child with my parents. The last time I was there I swear all of the exhibits in the actual forest had not been touched or changed in over 30 years.
Bob and I celebrated our 6-year anniversary on our way home from Ohio July 2nd. I can't believe all that we have crammed into 6 years. He is such an amazing husband and friend and I am grateful to be beside him each and every day.
The girls are also enjoying their summer and all of it's super-hot days. Thank goodness for our blow up pool and sprinkler. When we're not watering the lawn, they commandeer it and "frinkle" each other.
We are heading toward another huge milestone...Ava is moving into a "big-girl bed". We've waited a bit longer than we wanted to so now's the time. It's been difficult putting the crib and baby stuff away this time because I know I will not need it again. The last time, I put it away hoping that I would be pulling it out again. I think, in some way, she knows I want her to stay little as long as possible because I don't think she's grown at all in the last 6 months:) She's always been a peanut. So part of the reason behind getting the bed in there is that she's been having a hard time sleeping in her own bed. We actually let her sleep with Ella last night because she claimed there was a bird flying in her room. As soon as we left the room, Bob and I raced down to watch the two of them in the monitor and I was almost in tears. They were absolutely precious. Ava was snuggling Ella and stroking her hair. They slept right up next to each other all night...it was beyond priceless. Another moment in life where I feel totally blessed to be here to witness it.
What a wonderful week! Bob, Cassi and I ran in the 5k Teal There's A Cure race on July 4th and had a great time. Bob won first place in his age division and I was super-surprised to win as the first place survivor! I ran my fastest time to date and was as proud as ever to be a survivor. It was as great day and I'm forever thankful for everything I have been given:)
We got back from our trip to Ohio last night and we are all still sleepy today. The girls were AWESOME both on the ride there and back. I think Ella watched Lady and the Tramp about 10 times in a row. Ava was on a Strawberry Shortcake kick and I'm sure Cassi, Bob and I will be singing the songs for days. We had a great time at my Dad and Diane's. The girls loved being there too and especially enjoyed feeding the horses carrots and riding the roller coaster. We were fortunate to be able to attend a special church service with a wonderful congregation and pastor, who have all been so very supportive of my journey and recovery.
I'm excited to be running in the 4th Annual Teal There's A Cure 5K tomorrow. I have not been training as much as I should so I hope I at least finish with a decent time:) Summer now feels like it has started and I am soaking up every minute!! We have a few trips planned and I cannot wait. We'll be heading to Enchanted Forest in a few weeks and I hope the girls love it as much as I did when I was there age. It was one of my favorite places to go and I don't think they've changed a thing since back then. Happy Summer everyone!!
Today was the last official day of school for my students and tomorrow will be my last day. It's been quite a year at school and I pray every day that next year will be better. The education system, as well as the Syracuse City Schools are in quite a state of turmoil and change, especially from a teacher's perspective.
I am thrilled beyond words to be able to sleep in a bit and spend some much needed time with my girls and my husband. I feel so busy all the time and need to slow down. I'm looking forward to running in the Teal there's A Cure race in a couple of weeks, although I have no wanted to exercise at all in this heat! My sister Kim and her girls are coming in for a visit tomorrow so we are all excited to see them. We also will be leaving for Ohio next week to visit my dad and step mom. I hope I've thought of enough things to keep the girls busy during the car ride.
I met with my radiation oncologist yesterday and he said things are still looking great and that's the way we're going to keep it. I'm feeling great too...just exhausted:) but I don't know a mom who isn't. I hope you all enjoy this beautiful weather, even as hot as it is...all my love and thanks to you!
Hello to all of my friends and family-
As I celebrate 14 months of remission so far, I'd like to invite everyone to come support a wonderful cause. The Teal There's A Cure Run/Walk will be held on July 4th at Marcellus Park and I would love to have as many people support this cause as possible. The proceeds from this race will go towards ovarian cancer research and support groups for those battling this terrible disease. Please consider either joining Team Parish or, if you feel moved to, making a small donation to the team. I'm ready to run and hopefully I finish with a presentable time:)
The link to register is located below, and as always, thank you for your love and support:)
Thank you, thank you for your wonderful thoughts and prayers. I met with my oncologist today and got the results of my CT scan. She had me get a sonogram as soon as I got there because they found a small nodule that they wanted to be sure was nothing. It didn't show up on the sonogram or the exam so they think it is just scar tissue from radiation. I would lie if I said I wasn't ready to scream. I'm just waiting for the day that we go in and they say, "everything is totally clear and looks great!" The last few scans have been questionable and have required other tests to rule out things, which make my head spin every time. It seems like everything is OK and we'll be back for another scan in about 4 months. I'm grateful every day that life is so good and that I am surrounded by such good fortune and love...today was a great day, even with that bump in the road:)
I'm home today enjoying my mini-vacation from school due to our lack of snow days! The weather is perfect, not too much sun and a great breeze. I wanted to ask for prayers because my CT scan is tomorrow. This is the first time I've gone 4 months between scans and I'm a little nervous. I'm grateful that life has been so busy that I don't have a lot of time to worry:)I'll get me results on Tuesday so the weekend will feel long, but I'm hopeful and as positive as ever. I hope everyone enjoys this long weekend and thank you always for your care and concern.
Where did this last month go? Just when I think there is no possible way that life can get busier, it always does. I'm counting down the days until the end of the school year and simply cannot wait to spend the summer with my girls. Ella will be going to a 3-day, 2 hour, summer pre-school that she's very excited about. I, on the other hand, don't really feel like being away form her that much over the summer, but I'll survive. Ava and I will have some special time together.
My next scan is on May 25th, which is convenient since I don't have school that day. My sick days at school have dwindled significantly with all of my doctor's appointment and the occasional sickness. I'm missing my juicing partner and cousin Madelaine a lot lately. She's in Cuba attending medical school and I can't wait for her to return so we can try out some new recipes. I hope everyone is doing well and enjoying this heat wave:)
What a wonderful Easter we all had! We went to brunch with the family and then came back to have our Easter egg hunt at the house. Thankfully, it was sunny even if the wind was a bit chilly. Vacation is coming to an end so the girls and I have been out and about doing as much as we can. We're heading to the Strong Museum in Rochester tomorrow. Hopefully it won't be too crowded. The girls love it there and it's great to see how much more they can do each time as they get older. The countdown to summer has officially begun for us and I cannot wait!!!!! I have a port flush this Friday and they will schedule my next scan for the beginning of June...my first 4-month stretch. It's hard to believe that after this one I won't be having another until October. Overall, things are going really well. I'm still feeling great and wishing there was more time in every day. There is a 5K race in Marcellus this year, Teal There's A Cure, that I'm trying to get a team together for. Once I have everything set, I'll post info here so those of you who would like to join can. I think it would be a lot of fun:) Here's to all of you. Enjoy the sun and hopefully warmer weather will follow.
Went to the zoo today with Bob and the girls. I refuse to let this weather stop us! Last weekend was a ton of fun. I was asked to "model" in the Hope for Heather Breakfast at Tiffany's fashion show. I wore two dresses from Showoffs Boutique in Armory Square. I was definitely nervous but it ended up being a lot of fun for a great cause. Things are going really well for us and life is so good. School is winding down and I'm hoping next year will definitely be a better year for Syracuse City Schools and for teachers. This year has been a test for everyone, I think. My next scan is the beginning of June so I'm eager to get it done and have a wonderful summer with no scans:) Stay warm everyone and all my love to you!
Great news! Everything came back normal...all benign. Another huge sigh of relief. Now, if I could just stop getting sick I'd be great. I made the mistake of going to school yesterday because I was feeling a bit better and am home again today with either another phase of this flu or the nasty stomach bug that;s been going around. Either way, I made an appointment with my internal med doc and we'll see what she says. It's so hard to be in bed when it's so beautiful outside. I did get to be outside most of Sunday with the girls and just took it easy. It's so hard not to smile when the weather is like this, even if I feel terrible. Enjoy this awesome day!!
Had my larger biopsy yesterday. I started feeling under the weather right before we left and was freezing the whole time I was there. Five heated blankets later, they found that I had a temp of 100.1. Not that high, but they asked if I wanted to postpone the surgery until next week. I think Dr. Congelli knew from the look on my face that that wasn't a good idea:) We went ahead with the surgery and she said that there was nothing that jumped out at her as unusual or suspicious. I'm hoping for the results today or by Monday at the latest. I can honestly say that I don't think there is anything to worry about and that she is just playing it safe. The downside, I'm home again today and I think I have the flu:( The girls are off to Sara's and I'm heading up to go back to sleep.
I went to meet with Dr Congelli, a breast surgeon, yesterday and she did a small needle biopsy on the questionable spot and was able to get me in for an MRI a few hours later. She called me this evening and let me know that the MRI highlighted the area on concern a bit, but probably because she had just taken the biopsy a couple of hours prior. She also said that the biopsy showed some "atypical cells of uncertain origin", which she explained could be because I had some inflammation and a possible infection in that area. This was what I originally had thought when this all started. She wants to play it safe, especially with my history, so she scheduled me for another biopsy to get a larger section to send to the pathologist. I'll go in on Thursday under light sedation and be released the same day. I have to admit that the thought of another surgery makes my skin crawl, but I'm all for being aggressive and not letting questionable things go. I've still got a good feeling about this so I'm staying calm. I also really like this doctor and appreciate that she actually has a sense of urgency about things...I've found that to be an uncommon trait in others. Please keep me in your prayers as I know this too shall pass and my continued recovery can get on track with hopefully no more bumps in the road:)
Another beautiful day:) I met with my oncologist yesterday because I felt a lump in my right breast this past week. I have some history with this area and had a mammogram about 10 years ago. I have fibrocystic condition, which basically means that I have very dense breast tissue and sometimes this causes false alarms. I had a mammogram done yesterday evening and they did spot an abnormality so I'm meeting with a breast surgeon tomorrow to discuss a possible biopsy and MRI. Yes, I'm annoyed, and yes I'm frustrated. I'm sure this will be another false alarm, but the emotions and the fear are still there. I'll be honest in saying that I'm mentally exhausted from all of this. I'm still staying positive, but I really just want some time where my body stops sending me into panic every few months. I am grateful for all of my success and I know I need to just focus on that. Knowing that you are all still in my corner keeps me motivated to stay positive. And of course there are my 2 best motivators who continue to amaze me everyday and show me love that I cannot begin to understand:)
My vacation is off to a great start. We had a Strawberry Shortcake birthday to celebrate both of the girls birthdays this month. Ella will turn 4 this Sunday and Ava turned 2 Feb 6th. The last two years have flown by in a blink, as everyone warned me they would. I think often about the fact that Ava is my last baby and so I'm trying to freeze time in my mind so that these moments last longer. Ella is turning into such a little girl right before my eyes. She is loving preschool and this time at home with mommy:) She and Ava both visit Grandma Neenie and Aunt Cass for overnights as often as they can and love it.
Tomorrow I'm off to take my grandmother to chemotherapy so I'm bracing myself for all of those familiar feelings and fears. She was diagnosed with breast cancer this past year and is almost halfway through her treatments. This family has had way too many brushes with cancer and I hope this is the end for a long while.
We enjoyed the sun from inside yesterday because it was still a little too cold. I hope everyone is enjoying this beautiful weather we've been having. Spring is right around the corner:)
My doctor actually called me last night and told me that everything was fine and the only thing the PET picked up was my head cold! Another huge sigh of relief! I'm looking forward to a calm three months ahead before my next scan. As I've said before, this feels like a very long roller coaster ride and at times it's so exhausting, but....I'm here, healthy and life is good. Thanks to all of you for your prayers and thought always. Enjoy this "winter". I'm loving it!!!
Today is Ava's 2nd birthday and I can't believe how time has flown by. We had a wonderful weekend and celebrated a bit early with cupcakes on Saturday. We're throwing a larger party for both of the girls in a couple of weeks. February is a busy month so far and we're not even a week in.
My PET scan is scheduled for this Wednesday at 7:45am. I already made reservations for my hotel to "de-radiated" afterward. I know I'll enjoy the time to myself for a few hours, but then I'll miss Bob and the girls:( I have an appointment scheduled to get the results the following Tuesday, but am hoping that my doc will call me before that with good news. Praying for continued remission. Love to you all...:)
I met with my doctor today and got my results. They saw a spot that they said was a "thickening" on the scan. I immediately started freaking out and my doctor said that she felt nothing upon examination and that she feels somewhat confident that it's scar tissue. However, they want to play it safe and have a PET scan as soon as possible. Now I just have to wait for my insurance to approve it. The waiting game is one that you;d think I would be good at by now, but I'm not:) I try so hard not to get nervous because everything seems to going so well, but this has thrown me for a bit of a loop. I was in tears in the waiting room after I had read the report. I will remain strong no matter what and am praying that it's nothing like it has been before. I love you all for the prayers I knew were coming my ways the past few days. You all remain a tremendous inspiration to me just knowing that I have people out there thinking about and praying for me gives me strength I can't explain. I will keep you posted as to when the PET is scheduled for. Now I have to decide which hotel I'm going to check my radioactive self into after the scan. Maybe I'll actually read a book and relax...maybe:)
Getting ready tonight for my scan tomorrow. I made the appointment nice and early, 7:45 so I wasn't starving like last time. I've got this down to a Science! Please keep me in your prayers tomorrow and Thursday. I'm meeting with my gyn onc at 3pm to go over the results. Thank you always for your continued support and prayers:)
TGIF!!! Things are going smoothly and my scan is this coming Wednesday, Feb.1st. This one definitely crept up on me because things have been busy at work and home. I will meet with my gyn onc the next day for the results. I'm starting to get nervous just like I always do, but each time gets a little bit easier. I'm hoping to enjoy this weekend and take some time to relax. The girls have their birthday party coming up in a few weeks and I can't believe they're turning 2 and 4. Everyone told me time would fly by quicker than I imagined and they were so right! I hope you all have a blessed weekend...all my love to you. Keep me in your prayers for good news on Thursday:)
I'm home today enjoying my day off with my two little sweetie-pies! I wanted to let everyone know that I'm trying to rework this site to reflect my journey. I'm working on the center text and trying to add a link to my supplements and treatment regimen. It's taking some time, but I really want to document everything so that others might be able to use the site as more people seem to be getting diagnosed.
Met with the hematologist today and he was very thorough and optimistic. My counts were up a bit and he said that after such aggressive treatment and pelvic radiation, he's not surprised that my immune system isn't back to normal. He stressed that the radiation may have had a negative effect on my bone marrow, but may be repaired over time. He requested that I check back in with him in a few months to re-check...phew! Now I need to get through my scan in a few weeks. Thanks everyone for keeping up with me:)
I hope everyone has enjoyed this great weather because I have a feeling things are going to change. I'm praying for a snowday tomorrow, but I know it's a long shot:) I actually have an appointment with a hematologist tomorrow so hopefully he will have some info as far as possible reasons why my WBCs are still so low. I've been super-tired this past week, but I think it's just the fact that things go 100 miles an hour around here and work is as stressful as ever. I've started a yoga class with my sister Cassi every Wednesday and I think we've talked my mom into joining us. It's so relaxing that at the end I could easily just fall asleep on the mat and find myself there the next morning. The girls are doing wonderfully and Ella is very anxious for some snow. I was dragging her around the yard a couple of weeks ago in the sled and she had a blast.
I'm hoping tomorrow brings some answers. Thank you for your thoughts and continued prayers. I'm excited to celebrate my 1-year remission this March!
Happy New Year! I'm looking forward to a year of health and happiness. Things are starting off interestingly, however. I received a call form my gyn onc last night and she is concerned that my white blood cell count hasn't returned to the normal range this long after treatment. Thankfully, I haven't been sick, but now I'm a little nervous with all of my students and the fact that cold and flu season is upon us. She's trying to set up an appointment with a hematologist so that we can get to the bottom of this. I always get nervous with these tings so I'm trying to remain calm, but it's hard. Sometimes it feels like I can't take a deep breath and relax, ever! Anyhow, I also have my scan scheduled for Jan 27th so that will also be nice to get out of the way. Please keep me in your prayers and I will keep you all informed as soon as I know anything.
I want to apologize to everyone for my lack of posts. There have been some issues with the site and I've been unable to post anything since Thanksgiving. I want to thank Rodney, our webmaster, for fixing things and getting us up and running again.
Thanksgiving was wonderful and my cheesecake recipe turned out to be amazing! I've really found my niche as far as baking with natural sugars goes:) It was great to have my family with me and so memorable when I realize the strides we've all taken in the past year. I met with Dr Stram a few days after Thanksgiving and he was amazed at how well I was doing. He advised me to keep going with my current supplements and prescribed some blood work to check some of my levels.
We hosted the Greacen Christmas party the week before Christmas and loved every minute of it. I can't believe how large our family has grown. It seems like yesterday when my cousins and I were somersaulting down my grandmother's hallway and gorging on Aunt Claudia's peanut butter chocolate balls. Time is flying by and we all have families and children now. Life has been so good to us all.
Christmas this year was amazing! My family was there with me, which is always the best gift. The girls were spoiled by everyone and my house will never be the same. We've entered the small toy phase, where every doll has teeny tiny little accessories and nowhere to keep them all. Being Type A though, I'm going to find some kind of system that won't drive me crazy.
My next scan is at the end of January so I will try to keep busy to keep my mind off of it. This time of year, that shouldn't be a problem. I'm looking forward to having this week off to spend time with Bob and the girls. I love this time of year and am actually hoping for a little snow so I can run around in it this year:) Lots of love to you all and thank you for being patient while we waited to update the site. Merry Christmas and Happy New Year!
I had a wonderful dinner this past Thursday with some of the people who helped plan my benefit last year. What a wonderful group of people. Reminded me again of everything I have to be thankful for and how heartfelt their donation of time, money, and effort really was. We're getting ready for Thanksgiving and I can't wait. I'll be missing my dad as he is coming again this year for Christmas instead. I'm not sure how I'll survive in the kitchen without his "help":) I've got my new recipes all ready and even found a cheesecake recipe that I'm hoping comes out OK. I wish you all the best day with your friends and family and all of the joy this season brings...love to you all:)
Wanted to check in and tell everyone that things are great! I'm feeling wonderful and excited for the holidays. I actually get to go out in the holiday craziness this year, instead of having to do all of my shopping online, however, I'm not sure that's such a good thing. I still remember walking through Target with my mask on and realizing that everyone got right out of my way. It was a small perk:) I'm meeting with Dr Stramm the week after Thanksgiving to check in and review my current supplement regimen. I'm taking on Thanksgiving dinner again this year, but with many changes. I'm looking into some agave-sweetened desserts and other natural sugar options. So far, I've found a pumpkin pie recipe that I'm going to experiment with. Soooo excited to be happy and healthy this holiday season. Cheers!
Great news! The scan looked great and we couldn't be happier. There is a small nodule in my lung that they're keeping an eye on however. It was 5mm last time and measured at 6mm this time. A millimeter is so small that it could be an error, but we'll just keep watching it as I have another scan scheduled Jan 31st. Life is great and I thank each and every one of you for your continued prayers and support...love to you all!!!
Change of plans. My CT scan has been rescheduled to this morning. I realized that I never updated you all when I switched it. I'll be leaving in a few minutes and wanted to let everyone know. This one has definitely crept up on me. I've been too busy to worry, which is a good thing. I'm meeting with my doc tomorrow afternoon to discuss the results. I'll be holding my breath until then and just staying as busy as possible, which is an easy task.
Halloween is coming and the girls are so excited. Ella is dressing up as a cupcake and Ava will be a ladybug. We're planning on descending upon Zoo Boo this Saturday as my dad will be in town and we thought it would be fun to explore the zoo at night. We didn't get to go because of the crowds last year and my immune system so I'm especially excited to go this year. The months keep rolling by and I still can't believe where I am. Thank you all for you love and support and I look forward to posting tomorrow with good news!
It's 11pm and I should be in bed, but I just got finished writing a letter to a mom of another woman diagnosed with SCCOHT. It always brings everything back going through my old notes and names of docs. I feel badly that I haven't updated you all in so long. Ever since I went back to school, I've been struggling a bit. This is the worst year I can remember as a teacher and I just keep hoping things will turn around, only to find them getting worse. I'm trying so hard to stay positive, but I may be failing most of the time. I know that all I need to think about is my beautiful family and my health, but I get caught in the game and come out more stressed than I ever want to be. I know there's something positive that's coming from this, but I'm just not seeing it yet. I love my students and we all know that I can fight things out:) so I'm going to keep pushing and hope for the best.
My next scan is October 25th. I can't believe it's already here again. I go for blood work this Friday to be sure my kidney function is OK to drink the contrast dye. This week, I'm going to work on keeping everything in perspective. The girls are excited about Halloween and I keep thinking back to last year and where we were...there's perspective:) Ella is going to be a cupcake and Ava will be the cutest ladybug ever. Love to you all and so sorry for the long stretch in between posts.
Had an amazing time with friends and family at the race today. I ended up running my best time...30:15 and was so emotional at the finish line. I saw my husband, family, friends, and my two amazing girls clapping and smiling and I couldn't be happier!
I can't believe 2 weeks has flown by. I'm trying to relax today so I'm rested for tomorrow's Hope for Heather race. My team is growing by the day and I'm so grateful for all of the support to raise awareness for ovarian cancer. I'm hoping that I can run the whole 5k in a time that isn't too embarrassing:) I've been training, but have slacked a bit since school started and my time is no longer my own.
I'm feeling fine these days, just tired with the new schedule change. I'm trying to get back into things, but I find myself just longing for summer to be here again, and we're only 3 weeks into school. My students are great this year and I'm really enjoying them so that definitely helps.
With fall here, so many things remind me of where I was just one year ago that I keep counting my blessings over and over again. I remember digging the pulp out of pumpkins with Ella, feeling nauseous, losing my hair and trying my best to smile because I was so happy to be there. This year I will not be able to contain myself. My happiness is overflowing! Love to you all:)
School definitely started off with a bang. Things are crazier than I ever remember them being. We lost a ton of teachers and have a new principal and vice principal. I am one of three remaining middle school teachers and feel overwhelmed. Everyone is coming to me with questions and problems, and as much as I want to turn them away, I feel like I can't. I'm doing my best to keep my stress level low, but all I can say is that tings had better be getting better soon:) The girls adjusted just fine to being back at Sara's, mostly because she's the best baby-sitter ever! I'm still having random pains in my abdomen, but am ignoring them for now as I think they are the result of just working out a little bit too hard. I hope you are all enjoying this awesome weather...I know I am:)
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Summer is officially over for me in 3 days:( I've been at school a few times getting things ready and I am not ready to start again. This has been an awesome summer and I don't want it to ever end.
I realized today as the girls and I were wearing our teal to support Ovarian Cancer Awareness, that this is the same time last year that I started having symptoms and was admitted for surgery. I can't believe that a year has passed and that I am here, full of life, with a smile on my face and a lifetime of hope ahead of me. I hope that my school year starts smoothly and that I continue to have the success I've had...thanks to all of you:)
I apologize that this much time as gone by and I haven't posted. Summer has become a living being for us and has taken over. I want to get as much in before school starts as I possibly can. I'm feeling great and will not have another scan until late October so i can breathe for a while.
School starts for me September 1st and I will admit that I'm nervous. Our principal left for another school and almost all of the middle school staff went with him. It was not good timing for me to move, as I want this ear to resemble something of a normal life, with the only change being my girls growing up too fast:) Needless to say, I have change with a lot of new team members, but I have such a wonderful support system at school and so many great friends that I think everything will be fine. I am going to hold onto these last few days and enjoy every minute...hope you do too!
Summer is flying by and I am trying to make the most of all of this beautiful weather. I am still feeling great and haven't come down from the cloud I've been on since my results. Life is good:) I wanted to post a link to the Hope for Heather Run/Walk that I am going to participate in. This is an organization that creates awareness about ovarian cancer and contributes to research as well. I created Team Parish and would love to get as many runners/walkers as I can for this cause. The link below will allow you to join the team. The race is September 25th from 9-12 at Syracuse's Inner Harbor. You may have to copy and paste the link below to get it to work https://www.getentered.com/register/default.aspx?newgroup=true&event=5596&cat=20620
Of course there is no pressure, but it would be fun to get a group together. As always, thank you and have a wonderful week!
After an excruciatingly long 6 days, I finally received some great news. My scan is clear and everything looks great!!! I'm not sure why I doubted things, as life has been working itself out in such amazing ways, but the wait is finally over. I'll have another scan in 3 months so I can rest easy until then. Thanks to all of you for your continued concern and support. It really means the world to me:)
My scan went well yesterday, at least without incident:) Now the waiting game has begun so I hope time flies!
My CT scan is tomorrow and I'm staying as busy as I can to keep from thinking about it:) I won't get the results for almost a week so I need as many prayers and good thoughts as I can get. This will be a long 6 days! I'll post as soon as I know anything. Thank you everyone...love you all!
We are all trying to survive this terrible heat today. Thank goodness for AC! I am going for what I think will end up being another cortisone shot this coming Monday. My left wrist is still really painful and the right seems much better since the lat shot. I'm hoping it works this time because picking up either one of the girls makes me want to scream in pain every time.
As my scan approaches, I can't believe 3 months has already passed since the last one. I'm going for blood work tomorrow and my scan is Wed the 27th. The anticipation of the scan and then knowing that I will have to wait about a week for the results is nothing short of torture. It brings up lots of feelings that I work really hard to suppress. I've been thinking a lot about firsts. I remember when I was diagnosed thinking that I might not be here for most of the "firsts" that the girls would have...first day of school, first hair cut, first steps to run. I actually celebrated a "first" with Ella yesterday. We went to her firs-ever movie in the theater together. She loved the movie as much as the popcorn and I was bursting inside because this was another "first" that I was here for. I pray that this scan and all others will be clear and I ask you all to please keep me in your prayers over the next couple of weeks. I will post as soon as I know anything and as always, thank you for all of your support:)
We all just got back from a trip to Ohio to see my dad and stepmom. We had a great time, although a long car ride with Ella and Ava was interesting. It seems like no matter what time of day or night we leave, they refuse to sleep. It was a relaxing trip and it was nice to finally be able to travel to my dad as he's traveled here so many times this year.
There have been several people in my small cell group that have been commenting on a possible connection between pregnancy, hormones and this type of cancer. I have felt that this was a possibility all along, but all of the docs I've talked to said they didn't think that made sense. It's a complicated connection, I'm sure and there are many other factors to be considered, but I would be interested to find out what others think.
I hope you are all enjoying this amazing weather. I'm headed to lunch with my friend Nancy who won the Skaneateles experience with my cousins Billy and Chynna...should be fun:)
I hope everyone had a wonderful 4th of July! My sister Kim and my 2 nieces are up from Ohio and my girls are in heaven. They follow their cousins around like little puppy dogs and are so excited to have them here. It's nice to have all of the Jones girls together too:) I'm looking at my calendar for July and realizing that this month is going to fly by. Ella is doing a pre-K summer camp and likes it for the most part. I ran a mile or so a few days ago to get myself ready for my Livestrong program and I'm sooo sore. The hills near my house are brutal to try to run up, but a great workout. It feels so good to finally not have any restrictions...I thought this day would never come!
I've been communicating with another woman with a small cell variant and she's a fighter too so I'm hoping she gets through her treatment soon and starts feeling better. She's had a rough time with the chemo and has been hospitalized twice. Please keep her in your thoughts and prayers as you have for me. Her name is Deb. Enjoy this amazing weather...love to you all!
My first official day of vacation! The girls and I went to story time today and it already feels like I never went back to work. I will admit that Ella, who will be 3.5 at the end of August, is giving me a real run for my money. Forget terrible twos, three has got me mind-boggled most of the time. I can't help but feeling like everything she's seen and probably felt during my treatment has effected her in ways I'll never know. She is such a bright little light and so emotional, like her mother. I'm reminded every day of how my sisters and I would bicker over everything and I have to take a step back and just know that someday they will be best buddies:)
I'm still feeling great and have tried not to count down the days to my next scan. I'm actually proud of myself because I'm not even sure what date it is without looking at my calendar. All I know is that it's at the end of July. I'm only getting the CT scan this time to reduce my exposure so hopefully all will be clear!
I started the Livestrong Cancer Program at my YMCA last night. It sounds like a great program and I'm excited that I was able to get in...only because I'm type A and got all of my paperwork in ASAP. They had no idea who they were dealing with. I'm an expert at paperwork and faxing documents now:) It's a 12-week program where they focus on cardio, strength-training and overall wellness. I'm dying to get into a routine and to get back into shape. I've never been so excited to workout...something is definitely wrong with me:) I'll keep you all posted on how everything is going and thanks again for keeping in touch:) Your words of love and encouragement keep me strong!
So sorry for such a long time in between posts. I feel like things are so crazy with work and school that I can barely keep things straight. I cannot wait for summer vacation!!! I saw my onc on Tuesday and she said that she was confident that the bump on my abdomen was nothing but a popped suture or knot from the surgery so needless to say I was relieved. For now and I still feeling great, juicing, and will be beginning an exercise plan once school is out, as I am barely keeping my head above water with my normal day to day "stuff". I figure if I can get into a routine over the summer then the fall will be easy to step into. I'm doing great with my diet and just bought a book with recipes for baking with agave and I might just be able to eat chocolate chip cookies again, once in a while. I have an amazing recipe for agave cinnamon dark chocolate brownies that I indulge in every now and then and my whole family, including my grandmother, is hooked. I hope everyone had time to squeeze their loved ones this beautiful weekend. Thanks as always for being my support system:)
TGIF!!! What a week. I forgot how much energy you need to keep up with middle schoolers...whew. They kicked my butt this week, but I'll be up and ready for next week, which is our last full week of classes. My wrists are feeling much better, and I'm hoping I'm on the mend. My appointment with my ONC is this Tuesday so I'm interested to see what she thinks of this mysterious bump on my abdomen. I took it easy at yoga this week and felt much better afterward this time. I received a kit for a blood sample from TGenn, which is a research group studying the biology of SCCOH...the first one ever I think. I'm excited to be a part of what will hopefully be the beginning of an ongoing body of work designed to study this specific type of cancer. I'm excited to see what comes of it. I found out the other day that my super curly hair may not be permanent and I was a bit bummed:( I'm growing fond of it and hope it sticks around for a while. I had curly hair before, but this is kicked up a notch! Hope everyone has an awesome weekend and thanks again for keeping up with me:)
So I took a visit to a hand and wrist specialist yesterday after school and he told me that I have pretty severe tendonitis and gave me a shot of cortisone in both wrists...OUCH! He said that it should do the trick and if not it's a super-simple surgery, which I guess I would be game for. He couldn't rule out chemo as a suspect, and I have to admit that I was surprised to hear that someone else has had the same problem (Patricia)...we need to meet and compare notes:) For now I'm still pretty sore so I hope to start feeling some relief soon. As for my abdominal mass, I decided to make an appointment with in about a week so that she could take a look/feel. She's my surgeon so I just feel better having her take a look. She said it may be a pulled suture. I almost laughed when she said this because all I could think of was the hard-core yoga class I went to that killed my abs...maybe that's the culprit.
I have to admit that I'm counting the days to summer vacation and I can't wait to be home with my girls again. I hope everyone is enjoying all of this crazy-beautiful weather!!
Hi everyone! I hope you're all enjoying this awesome weather. We went and got lots of veggies for the garden and are planting tomorrow. I had a little scare Friday and left school early. When I woke up, I felt a lump in my belly and it freaked me out so I went in to see my Onc. Her nurse practitioner examined me and sent me for an ultrasound. The unltrasound confirmed a pea-size mass, but could not say what it was. We didn't want to do a CT so soon after the last one so we're going to watch it for now and probably get another ultrasound it a couple of weeks to be sure it's not growing. There are lots of things that it could be, including scar tissue from my incision, but to be safe we're keeping a close eye on it. I try not to get too nervous, but it's difficult. For now, I'm just praying that it's nothing:)
I'm home with Ella today who has had a fever for the past two days. Ava is spending the day with Grammy and Gramps and I'm sure will love the one-on-one time. I made an appointment with an orthopedic hand specialist because the pain in my wrists has gotten pretty bad. I may not have posted about this before. About 5 weeks ago I started getting severe pain on the underside of both wrists that would travel up my thumb. It almost felt like I'd sprained them, but I hadn't done anything that would have injured them. After about 3 weeks I started researching whether or not this may be connected to any of my breitling replica watches http://www.discountshoponlines.org.uk/breitling
treatments and I did come across a few people who complained of wrist and joint pain after chemo. I called my onc yesterday and she said that she'd never heard of that and referred me to this specialist. I have an appointment next week so we'll see what happens. They'd better not even say the word "surgery" or I'm outta there:)
I've thought a lot after my last entry and talked to a lot of different people about how I've been feeling. It's been so hard to put parts of my experience into words. I have so much gratitude and have been given such a gift that I just want to make it all count at the end of the day. I used to get all anxious if my house wasn't clean enough or if the laundry piled up, but now I could care less. If I have time, I do it. I would much rather spend that time with my family, creating memories and just having fun! It's hard to switch perspectives at 33, but I'm determined to make the best out of what I've been given.
Week three has begun and life is getting crazier by the minute. I miss my relaxing days at home with the girls...well most of the time they were relaxing:) I took my first yoga class last night and I'm so sore today. I was wondering why the ab workout was so difficult and painful and then I thought about my surgery and where the incision was and it made perfect sense. I may have pushed a bit too hard the first time because I'm definitely paying for it today. I will admit that going back to work has been a bit of a struggle mentally. My life has changed so much that sometimes I feel like I was a piece of a puzzle before this all happened and I fit right into a niche at school and now the shape of my piece has changed and I'm not sure how to make it fit again. It's hard to explain...I'm so happy to be alive that the things that used to bother me don't matter and all I want to do is be around people that are positive and that can be hard. I don't want to get all gushy, but I just hope that I can find a way to wrap my head around everything. I can never find the right words to thank all of you for keeping me in your prayers and staying positive with me throughout this journey...it means so much:)
This week is going very well and I'm excited for the weekend. I'm feeling much less tired and am enjoying being back in the classroom with my crazy 7th graders. They are a spirited bunch, but very sweet. It still feels like September to me so hopefully they are enjoying my class as much as I am enjoying getting to know all of them. I've finally settled into a good routine with my supplements, juicing, smoothies, etc. and I don't even need my little chart anymore to remember what to take:)
I wanted to post some information on a fundraiser for a friend of mine who lost his battle with cancer a few years ago. His family has set up a memorial scholarship in his name through Fabius- Pompey schools. If you like to golf, or just want to stop for dinner, it's going to be a great event!
Visit on Facebook under: Fore K.L.B.
Date May 29, 2011
Location: Orchard Vali Golf Course, 4693 Cherry Valley Turnpike, LaFayette , NY 13084
Entry Fee: $50 per person. Includes 18 holes of golf, cart, hotdog at the turn and dinner.
Dinner Only: $20 for adults, $10 for kids 12 & under. Kids 5 & under are free. BBQ Pork & Chicken, baked Beans, Salt Potatoes, Mac Salad
Registration at noon. Shotgun Start at 12:30 p.m. Dinner at approximately 5 p.m.
If you do not have a foursome, no problem. They are happy to pair you up with other golfers. Remember it ' s Captain & Crew so you don ' t need to be a pro... just come out and have a good time!
ALL proceeds will benefit the Kermit L. Breed Scholarship Fund.
The ALTER EGO Band will be playing during dinner!
Sponsor ' s needed! No donation is too small! We need event sponsors and raffle prizes. If you would like to be a sponsor please send an email to email@example.com.
STORY about Kermit:
Kermit was born and raised in the close-knit community of Fabius, NY. The youngest of eight, Kermit was an avid athlete and loyal friend, dedicating himself to baseball, golf, Volleyball, soccer and people around him. After high school, Kermit attended Clarkson University, earning himself a Master's in Business Administration. He then landed a job at Johnson Controls and relocated to Boston.
Kermit was diagnosed with Stage IV colorectal cancer in June of 2004 at the age of 26. With the help of his friends and family he underwent major surgery, moved back to Fabius and received chemotherapy and radiation to treat his cancer. Fighting hard until his last minute, Kermit died on January 26, 2009.
This was a tough week for sure and I'm actually home sick with strep today. I think it was a combination of being exposed at work and the fact that I was pretty rundown by Thursday. I'm hoping to feel better this weekend and maybe enjoy some nice weather. I've been hearing such great stories from a small cell group that I belong to from people who have been treated and are still clear years later. It makes me feel so hopeful for the future. Happy Mother's Day everyone!
Well, I survived the first two days back to school and am still standing! It was great to get back to teaching and everyone at Frazer has been so amazing, from the hugs to wearing their Carrie's Journey t-shirts, they have been a huge source of support for me. I'm definitely tired, but I can deal with that:) I'm excited to celebrate another Mother's Day this weekend and am praying for great weather this weekend.
Just received the BEST news! My scan was completely clear and there weren't even any questionable spots or scar tissue. This is better news than I was even prepared for and I owe so much of my success to all of your thoughts and prayers. Thank you SOOOOO much...now I'm off to celebrate:)
Hope everyone had a wonderful Easter! The girls had a great time and we held our first-ever egg hunt at the new house. We had hoped to be outside, but since it was raining we hunted indoors. Ava was surprisingly adept at finding the eggs and putting them in her bucket.
I'm heading off tomorrow for my scan and my 1 day radioactive vacation:) I'll be staying at a hotel again so as to keep my
"radioactiveness" from the girls. Maybe I'll finally get a good nights sleep. Thanks again for your prayers and I'll let you know how everything goes:)
Today was a beautiful day, after the rain stopped, and we were finally able to get outside. I've been reflecting a lot on this journey, and as this next scan gets closer and Easter arrives, I can't help but think once again how very beautiful life really is. I have the most amazing people around me and I'm ready to start the next chapter of my life. I would be lying if I said that I'm not scared to death about this scan...I am. I've been praying and doing everything under the sun to calm myself down, but I'm still scared. Please pray for me and send all of your amazing thoughts my way. My scan is at 10:30 Monday morning and I receive the results the next day at 2pm.
I wish you all the very best Easter and hope you find time to give each person you love a huge squeeze!
Hi everyone! Wanted to let you all know that there's some sort of problem with the photo album so if it's not working for you, you're not alone. Hopefully we'll be able to fix it quickly. I thought I'd treat you all to some of my G.I. Jane look. I must say though that my hair is growing in really quickly and is as curly as ever. Well, I guess you would just call it wavy right now as it's not quite long enough to actually "curl".
Sorry for such a delay in posting. Ella has been sick the past few days and in need of lots of "mommy time". My dad has been here visiting us and it's been great to see him. He and Ava are quite a pair and I know she will miss him so much when he leaves. They've been inseparable pretty much since she was born, at least whenever he visits. I've moved onto the second phase of my post-radiation supplements, which is easier to deal with than the first. I actually had to create a chart for the first round to be sure I didn't miss anything. My scan is a week from today and I'd be lying if I didn't say that I'm terrified but I know all of your thoughts and prayers will help me through. I've added some new photos to the album on the right so check them out!
Such a beautiful day here in CNY! We were able to get out a do a bit of yard work today and then attended a benefit for a friend with ALS. It was a wonderful day and I am always so happy when the sun is out! I stopped by Frazer and saw so many of my wonderful friends. I am getting excited to return and actually got a bunch of work done while I was there. My substitute has done a great job and I know the kids will be sad to see him go.
I'm having a bit of trouble obtaining the scenar machine for my feet and now hands. Hopefully I will be getting it this week. I'm so eager to see if it works, especially on my hands. Everyone seems very puzzled as to why all of this is happening so late in the game. I went to my oncologist to have blood drawn again to check my levels and thought maybe I could talk with her quickly about it to see if she had any other ideas (other than loosening my shoes!) but she told the nurse that I could just move my appointment up if I wanted to talk to her. Unfortunately, my appointment isn't until the last Thursday in April and since I am getting my scan results, which won't be ready until then, that would be pretty impossible..uugggghhh! I bit my tongue, to the best of my ability for those of you who know me, and left with a smile. She wasn't going to get me down that day...thank you anyway:) Please keep me in your thoughts and prayers as this scan grows closer. Love to you all:)
What a beautiful weekend! Even though it was a little windy, we were able to enjoy the sunshine and play outside both days. Poor Ava looked like a marshmallow, but I know she was warm:) I'm feeling great and heading towards what another survivor called my "new normal". I had my port flushed last week and they told me that my potassium and calcium levels were low. They prescribed potassium, but after talking to Dr Stram, he advised some additions to my diet to get me back to normal. I'll have labs drawn again Wednesday so we'll see how I did. I made some avocado and raw cacao mousse last night and thought it was great at first, but then the texture started to bother me so Bob is now in charge of finishing it:) Even though I used my immersion blender, it still reminded me of the horrible fruited jello from elementary school and I just couldn't do it.
I'm planning on visiting Frazer Wednesday to see where things might be in May when I plan to return. I will be getting my scan results 3 days before I start again so it's going to be a little bit stressful for me, but I know things will b